benefits of the bovine patch vs. synthetic patch, wondering what your chances will be of actually getting mad cow disease, and then secretly wondering if you will be prone to unexpected “mooing” and how that will affect your job situation.ġ4. Insensitive people (bosses, educational professionals, family members, coworkers, nurses, doctors).ġ3. An over-sensitive nervous system results in frequent “unpleasant tactile experiences.” For example, needing at least ten napkins (ideally wet ones) to deal with sticky fingers at meal time, the weird squishy feel of cotton the balls in medicine bottles give you shivers up your spine and any accidental contact of teeth with tin foil is enough to put you over the edge.ġ2. Learning brain decompression surgery for Chiari is not a cure, but you still need to have said surgery in order to prevent permanent nerve damage (without a guarantee surgery will help alleviate any of your current symptoms).ġ1. Dealing with mixed up brain signals that make you to turn right when you know you need to turn left. Thank goodness for GPS!ġ0. Learning how to communicate with doctors so you do not come off as “knowing” more than they do, or appearing to be a drug seeker or hypochondriac.ĩ. Finding a neurosurgeon or any doctor who specializes in Chiari in or near your home state who is also in your insurance network.Ĩ. The frustration you experience after multiple appointments with multiple doctors who all tell you, “Chiari does not cause pain or any symptoms and is just an incidental finding, not the cause of your symptoms.”ħ. Being able to sneeze, laugh and/or bend over without getting a headache.Ħ. Learning to ride a bike or anything else requiring balance for that matter.ĥ. Severe headaches which can last for days (the kind that feels like your skull is trying to give birth to your brain through your neck and/or any other hole in your head).Ĥ. Frequently find yourself wondering if you are a hypochondriac, mentally ill or just “lazy.”ģ. Here are 31 problems people with Chiari malformation will definitely understand:ġ. September is Chiari Malformation Awareness Month - Spread the word!Ĭhiari malformation is “a serious neurological disorder where the bottom part of the brain, the cerebellum, descends out of the skull and crowds the spinal cord, putting pressure on both the brain and spine and causing many symptoms,” according to Conquer Chiari.
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